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23

Feb 2017

METASTASTIC BREAST CANCER (MBC) PATIENT ENCOURANGED TO JOIN SUPPORT GROUPS TO REDUCE THE RISK OF EMOTIONAL STRESS.

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During a survivor, patient and family meeting that was held on December 3rd 2016 at UWOCASO offices. Metastatic Breast Cancer (MBC) patients were encouraged to join support groups in order to learn copying techniques and reduce their risk of emotional stress.
\r\nThis was emphasized by Ms. Leah Kasule and Elizabeth Kazibwe survivors who were the guest speakers of the day. Elizabeth encouraged members’ to take care for themselves , take enough rest also love and reward themselves whenever they feel better, She urged patients to communicate their needs and concerns to their care takers in order to get maximum social support. Leah emphasized the importance of participating in support groups for peer support and learns from their peers how to solve challenges that come as a result of living with metastatic disease.
\r\nSurvivors and patients were advised to learn and adopt the following copying techniques;
\r\n•    Live day at a time.
\r\n•    Communicate their needs and concerns to their needs and concerns to their care takers.
\r\n•    Relax regularly.
\r\n•    Eat plenty of fruits and vegetables but continue eating other foods that build their bodies and give energy.
\r\n•    Pray and have time to meditate.
\r\n•    Understand their disease and be aware of the available supportive services and resources in their locality.
\r\n•    Focus on positive issues
\r\n•    List their questions regarding their health care before visiting their health care providers.
\r\n•    Understand their treatment, the’’ dos and don’ts’’.
\r\nThis meeting doubled as a patient’s Xmas party, participants prayed, danced and shared a meal together. It was an interactive meeting including group therapy and peer to peer counseling.
\r\nThe meeting was attended by 69members including Metastatic Breast Cancer (MBC) patients and their families, survivors and well-wishers. Patients were invited to show case and sell out their crafts like mats, handbags, jewelries and others to their peers and participants. The sale of items is a motivation to patients and survivors who are struggling with medical and food bills.
\r\nThrough these meetings there is increased connectivity between patients, survivors and health care providers.
\r\nThis work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

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23

Feb 2017

UWOCASO PARTNERS WITH VISION GROUP TO INCREASE EARLY DETECTION OF BREAST AND CERVICAL CANCERS IN UGANDA.

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During a three days Health Literacy Camp organized by Vision Group of companies, between September 22rd to 24th 2016 at Centenary Park in Kampala, UWOCASO volunteers sensitized masses about the importance of screening , early diagnosis and treatment. They demonstrated Breast Self-Examination (BSE) and distributed IEC materials to thousands who turned up.\r\nPrior to the event, UWOCASO participated in a breakfast TV interview where Gertrude educated the viewers of Bukedde TV1, the challenges women face when living with Metastatic Breast Cancer. On the TV she encouraged the population to give emotional support to Metastatic Breast Cancer patients and their families and also assist them access pain relief and other supportive services that improve their quality of life. She responded to callers that there is increased survival with early detection and if women learnt early signs through Breast self-Examination and screening.\r\nIn addition, the camp involved several partners which included; Uganda Non-Communicable Disease Alliance, Reproductive Health Uganda among others educated the population on the importance of prevention and treatment of different diseases.\r\nAfter the camp there was increased number of women seeking for cancer information and supportive services at UWOCASO offices.

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22

Feb 2017

UWOCASO RECEIVES NEW NATIONAL GUIDELINES FOR RESEARCH CONCERNING HUMAN PARTICIPANTS.

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UWOCASO and UCIREC after the Assessment process.

UCIREC Team and UWOCASO Staff after a monitory visit to assess the site operations and implementation at UWOCASO Offices.

\r\n\r\nOn  August 9th 2016 a team lead by Uganda Cancer Institute Research and Ethic Committee(UCIREC ) Chairperson Dr. David Kyaddondo conducted a monitory visit to UWOCASO to assess the site operations and implementation process for the study ‘’Assessment of Clinical and Psychological Needs of Metastatic Breast Cancer ( MBC) patients , challenges and gaps in meeting their needs in Uganda’’.\r\nDuring the visit, Gertrude co-investigator made a presentation about site operations after which the team reviewed different documents which included; protocol submission and Institutional Review Board (IRB) approvals, training records, Standard Operation Procedures(SOP), Draft Reports/ Abstract, informed consent forms and data collection tools. In addition the team accessed and checked the database in relation to the approved data abstraction tools.\r\nAfter verification of documentation, the team applauded UWOCASO for the co-operation of staff and how well the site had transformed into a research site in short period. They were impressed about confidentiality about project documents data and maintaining the Ethical standards of research.\r\nAt the end of the monitoring visit UCIREC team commended UWOCASO’s work in improving the lives of Metastatic Breast Cancer (MBC) and other patients in Uganda. Ms. Maria Musisi handed over the updated National guidelines for research, research registration and clearance policy to the investigators 2016. The Team recommended a supplementary training to be delivered by UCIREC to empower UWOCASO research team and sighted out a few challenges that the team had faced during the implementation process.\r\nThis work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

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