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25

Apr 2017

The Speaker of Parliament of Uganda calls for Intensive Cancer Advocacy

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The Speaker of Parliament Rt. Hon. Rebecca Kadaga called for more breast cancer awareness and Advocacy in order to increase early detection and improve survival rates.

The Speaker was addressing a dissemination workshop organized by Uganda Women’s Cancer Support Organisation (UWOCASO) following their research study entitled:- “ Assessment of Clinical and Psychological needs of Metastatic Breast Cancer Patients, challenges and gaps in meeting their needs in Uganda”

The workshop was held on April 20th, 2017 at Hotel Africana.

Kadaga said “We do not do advocacy, conduct check-ups and lack the proper equipments in our health centres.  People need to know how to deal with the disease and where to get the necessary treatment.”

She applauded UWOCASO for their efforts in creating awareness and supporting metastatic breast cancer and other patients but urged the Ministry of Health to take charge and lead national campaigns against non communicable diseases and cancer in particular.

She added that Parliament enacted a law that granted Uganda Cancer Institute Autonomy and the Anti- Tobacco bill among others. “I invite UWOCASO and Uganda Cancer Society to partner with Government to address the gaps that exist in the fight against cancer in Uganda.  She added that Government is supportive of the HPV vaccine for young girls and through her office other cancer control efforts will be supported

She pledged her full support to UWOCASO to make the survivors’ voices heard at the floor of Parliament and encouraged UWOCASO leadership and partners to continuously engage and update her on the cancer advocacy efforts. She added that the parliament is always available and willing to support this noble cause.

The workshop was attended by among others Commissioners from the Ministry of Health, Ministry of Finance, Bank of Uganda, Country Director PATH, National Medical Stores, surgeons from Mulago National referral hospital, consultants from Uganda Cancer Institute, Director of Kampala Cancer Registry, Representatives from the Italian corporation and American Cancer Society, Uganda Alliance of patient organization and Uganda Cancer Society members, Uganda Non communicable Disease Alliance, and representatives of the major private not for profit hospitals.

In attendance was Grace Irura Sales Manager at Pfizer for East Africa. She congratulated UWOCASO for the great achievements in the Seeding Progress and Resources for cancer community (SPARC) project.  She was happy to note that UICC’s first initiative to support projects working towards addressing the unmet needs of Metastatic breast cancer patients globally was progressing well. “We are happy that UWOCASO benefited from SPARC grants and made good progress with it.” She informed members that UWOCASO was among the twenty organizations from eighteen countries whose proposals were accepted and awarded. “Thank you Gertrude and your team” she concluded.

The research identified the existing gaps and challenges in meeting the needs of Metastatic breast cancer patients. The workshop was concluded with a panel of experts who discussed the findings together with all the participants came up with the roadmap for intervention for metastatic breast cancer   and suggestions to address the gaps in policy and service delivery.

This work was supported by UICC SPARC MBC challenge Grant

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10

Mar 2017

City Tyres fulfils commitment to double your donation towards Breast Cancer awareness campaign.

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Kampala Uganda 7th, March 2017, Mandela Group of Companies fulfils its commitment to match all donations by the public through donation boxes that were placed at Cafe Javas and City Tyres outlets in Kampala eight months ago.
City Tyres Marketing Manager Herbert Bashasha applauded UWOCASO for the efforts in increasing awareness about the importance of early diagnosis and treatment of cancer in Uganda. This was at City Tyres’ Head Quarters on 6th, street Industrial area when handing over a cheque of Uganda shillings twenty two million (22m) to UWOCASO’s Board Chair. The function was organized to honor the Mandela group Chairman’s pledge to match every shilling that was donated by the public into the boxes.

On behalf of City Tyres, Mr. Bashasha cautioned UWOCASO leadership to remain accountable to their donors a value that Mandela group based on to support the cause. He mentioned that the group is committed to continue supporting UWOCASO’s efforts in improving access to cancer information that meaningfully change lives of women and girls in Uganda.  “On behalf of our Chairman Alhaji Omar Mandela, I hand over the cheque to UWOCASO Chair to honor our pledge” Bashasha stressed.

At the same function he announced a donation of ten thousand (10,000) pink ribbons worth Uganda shillings fifty million (50m) printed for UWOCASO to sell and raise funds toward awareness and patient support activities. These were also handed over to UWOCASO members.
“The group is happy to continue this partnership and the donation boxes will be placed back to the outlets and the public is encouraged to continue donating” Mr.Bashasha said.
The initiative was launched on 30th July, 2016, with twenty (20) donation boxes that were placed in all cafe Javas and City Tyres outlets in Kampala and Entebbe. During the function Alhaji Omar Mandela committed to match all the donations in those boxes in order to double UWOCASO’s impact in the fight against breast cancer in Uganda.

In October 2016, the boxes were opened and proceeds counted totaled to Uganda Shillings eleven million (11m), which is doubled today by City Tyres.

In appreciation, UWOCASO’s Chairperson Mrs. Rebecca K. Mayengo expressed the organization gratitude to City Tyres for the partnership to increase access to cancer information and provision of supportive services to women and their families fighting cancer.
She informed members that UWOCASO is finalizing a strategic plan which is focusing on; – Information and awareness, supportive care, knowledge building and organizational sustainability therefore UWOCASO’s partnership with Mandela Group of Companies is timely to support these programs. She called upon corporates, media, individuals and civil society organizations (CSOs) to join the fight against cancer. “Nobody can fight cancer alone ”Rebecca said. She lamented that UWOCASO is implementing programs with challenges of accommodation especially for the patients navigated by members.  She pledged that UWOCASO has built strong structures for governance, finance and a five year strategic plan therefore; the donation received will be put to proper use based on the system in place. She emphasized the need for a concerted effort involving all stakeholders to reduce cancer burden in Uganda.

We express our sincere appreciation to the public for your contributions in the donation boxes, management and staff of Mandela group of Companies for the cooperation and support in this fundraising initiative aimed at Breast cancer awareness campaign.

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09

Mar 2017

UWOCASO SURVIVORS GAINED KNOWLEDGE IN RESEARCH ETHICS.

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December16th 2016, a team of Eighteen including research assistant data entry clerks and investigators who were the core staff in UWOCASO’s study “Assessment of clinical and Psychological needs of MBC patients, Challenges and gaps in meeting their needs in Uganda” attended a full day training workshop which was facilitated by UCIREC team led by Maria Musisi and Annet Nakaganda.
The training emphasized Protecting Human Participants, Ethical Consideration in research activities involving Human Participants how research has evolved since 1939. The team pointed out the significant historical events that brought about the birth of Ethical guidelines for Human Research Participants. During the workshop UCIREC team educated UWOCASO staff, about the National regulatory bodies and the importance of understanding their requirements when developing research projects.
The team was taken through various documents, procedures that are needed for a successful research study. Which included; details of informed consent, Logs, (Standard Operations Procedures) SOPS, designing a study protocol and compliances, Maria emphasized the need to understand the parties involved in any research study and must be well understood by each party at the beginning of the project. She informed the trainees that the parties in question include donors, sponsors and investigators to understand each other’s roles and responsibilities.
She emphasized that the relationship between parties must be legally binding. The training built UWOCASO’S capacity and prepared the institution for future research projects.
This work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

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