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09

Mar 2017

UWOCASO SURVIVORS GAINED KNOWLEDGE IN RESEARCH ETHICS.

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December16th 2016, a team of Eighteen including research assistant data entry clerks and investigators who were the core staff in UWOCASO’s study “Assessment of clinical and Psychological needs of MBC patients, Challenges and gaps in meeting their needs in Uganda” attended a full day training workshop which was facilitated by UCIREC team led by Maria Musisi and Annet Nakaganda.
The training emphasized Protecting Human Participants, Ethical Consideration in research activities involving Human Participants how research has evolved since 1939. The team pointed out the significant historical events that brought about the birth of Ethical guidelines for Human Research Participants. During the workshop UCIREC team educated UWOCASO staff, about the National regulatory bodies and the importance of understanding their requirements when developing research projects.
The team was taken through various documents, procedures that are needed for a successful research study. Which included; details of informed consent, Logs, (Standard Operations Procedures) SOPS, designing a study protocol and compliances, Maria emphasized the need to understand the parties involved in any research study and must be well understood by each party at the beginning of the project. She informed the trainees that the parties in question include donors, sponsors and investigators to understand each other’s roles and responsibilities.
She emphasized that the relationship between parties must be legally binding. The training built UWOCASO’S capacity and prepared the institution for future research projects.
This work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

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23

Feb 2017

METASTASTIC BREAST CANCER (MBC) PATIENT ENCOURANGED TO JOIN SUPPORT GROUPS TO REDUCE THE RISK OF EMOTIONAL STRESS.

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During a survivor, patient and family meeting that was held on December 3rd 2016 at UWOCASO offices. Metastatic Breast Cancer (MBC) patients were encouraged to join support groups in order to learn copying techniques and reduce their risk of emotional stress.
\r\nThis was emphasized by Ms. Leah Kasule and Elizabeth Kazibwe survivors who were the guest speakers of the day. Elizabeth encouraged members’ to take care for themselves , take enough rest also love and reward themselves whenever they feel better, She urged patients to communicate their needs and concerns to their care takers in order to get maximum social support. Leah emphasized the importance of participating in support groups for peer support and learns from their peers how to solve challenges that come as a result of living with metastatic disease.
\r\nSurvivors and patients were advised to learn and adopt the following copying techniques;
\r\n•    Live day at a time.
\r\n•    Communicate their needs and concerns to their needs and concerns to their care takers.
\r\n•    Relax regularly.
\r\n•    Eat plenty of fruits and vegetables but continue eating other foods that build their bodies and give energy.
\r\n•    Pray and have time to meditate.
\r\n•    Understand their disease and be aware of the available supportive services and resources in their locality.
\r\n•    Focus on positive issues
\r\n•    List their questions regarding their health care before visiting their health care providers.
\r\n•    Understand their treatment, the’’ dos and don’ts’’.
\r\nThis meeting doubled as a patient’s Xmas party, participants prayed, danced and shared a meal together. It was an interactive meeting including group therapy and peer to peer counseling.
\r\nThe meeting was attended by 69members including Metastatic Breast Cancer (MBC) patients and their families, survivors and well-wishers. Patients were invited to show case and sell out their crafts like mats, handbags, jewelries and others to their peers and participants. The sale of items is a motivation to patients and survivors who are struggling with medical and food bills.
\r\nThrough these meetings there is increased connectivity between patients, survivors and health care providers.
\r\nThis work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

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23

Feb 2017

UWOCASO PARTNERS WITH VISION GROUP TO INCREASE EARLY DETECTION OF BREAST AND CERVICAL CANCERS IN UGANDA.

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During a three days Health Literacy Camp organized by Vision Group of companies, between September 22rd to 24th 2016 at Centenary Park in Kampala, UWOCASO volunteers sensitized masses about the importance of screening , early diagnosis and treatment. They demonstrated Breast Self-Examination (BSE) and distributed IEC materials to thousands who turned up.\r\nPrior to the event, UWOCASO participated in a breakfast TV interview where Gertrude educated the viewers of Bukedde TV1, the challenges women face when living with Metastatic Breast Cancer. On the TV she encouraged the population to give emotional support to Metastatic Breast Cancer patients and their families and also assist them access pain relief and other supportive services that improve their quality of life. She responded to callers that there is increased survival with early detection and if women learnt early signs through Breast self-Examination and screening.\r\nIn addition, the camp involved several partners which included; Uganda Non-Communicable Disease Alliance, Reproductive Health Uganda among others educated the population on the importance of prevention and treatment of different diseases.\r\nAfter the camp there was increased number of women seeking for cancer information and supportive services at UWOCASO offices.

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