UWOCASO Online

News

22

Feb 2017

UWOCASO RECEIVES NEW NATIONAL GUIDELINES FOR RESEARCH CONCERNING HUMAN PARTICIPANTS.

Posted by / in News / No comments yet

UWOCASO and UCIREC after the Assessment process.

UCIREC Team and UWOCASO Staff after a monitory visit to assess the site operations and implementation at UWOCASO Offices.

\r\n\r\nOn  August 9th 2016 a team lead by Uganda Cancer Institute Research and Ethic Committee(UCIREC ) Chairperson Dr. David Kyaddondo conducted a monitory visit to UWOCASO to assess the site operations and implementation process for the study ‘’Assessment of Clinical and Psychological Needs of Metastatic Breast Cancer ( MBC) patients , challenges and gaps in meeting their needs in Uganda’’.\r\nDuring the visit, Gertrude co-investigator made a presentation about site operations after which the team reviewed different documents which included; protocol submission and Institutional Review Board (IRB) approvals, training records, Standard Operation Procedures(SOP), Draft Reports/ Abstract, informed consent forms and data collection tools. In addition the team accessed and checked the database in relation to the approved data abstraction tools.\r\nAfter verification of documentation, the team applauded UWOCASO for the co-operation of staff and how well the site had transformed into a research site in short period. They were impressed about confidentiality about project documents data and maintaining the Ethical standards of research.\r\nAt the end of the monitoring visit UCIREC team commended UWOCASO’s work in improving the lives of Metastatic Breast Cancer (MBC) and other patients in Uganda. Ms. Maria Musisi handed over the updated National guidelines for research, research registration and clearance policy to the investigators 2016. The Team recommended a supplementary training to be delivered by UCIREC to empower UWOCASO research team and sighted out a few challenges that the team had faced during the implementation process.\r\nThis work has been supported by Union for International Cancer Control (UICC) Metastatic Breast Cancer (MBC) challenges grant.

Please select the social network you want to share this page with:

04

Feb 2016

UWOCASO RECEIVES SPARC mBc AWARD

Posted by / in News / No comments yet

Kampala, February 4th, 2016, Breast cancer is the commonest cancer among women globally in terms of both incidence and mortality rates. Uganda has one of the highest age-standardized incidence rates for breast cancer in the Africa region with the highest incidence occurring among women 35-45, with an estimated ASR for incidence of 38.3 per 100,000 women which is one of the highest in the region. Breast cancer disease is associated with biomedical and psychological demands on the affected women and their families. Clinical and supportive care services are offered to patients to meet these needs, improve survival and quality of life. However, the existence of barriers to access and challenges affect the satisfaction of Metastatic breast cancer(MBC) patient’s need and imply that the available services cannot be expected to meet every clinical and psychological need of MBC patients and there is the need to identify the unmet needs, the challenges and gaps in meeting these needs.

\r\n

With financial support from Union for International Cancer Control(UICC) and Pfizer today 4th, February 2016, UWOCASO launches a SPARC Metastatic breast cancer challenge project “Advancing Metastatic Breast Cancer(MBC) understanding and supportive care in Uganda” The project will assess the clinical and psychological needs of mBc patients, challenges and gaps in meeting these needs. Identifying the unmetneeds and challenges will help in prioritization and targeting of interventions that can effectively meet mBc Patient needs, improve survival and quality of life of MBC patients in Uganda.

\r\n

UWOCASO is among the 20(twenty) organisations from 18 countries worldwide who received the Seeding Progress and resources for Cancer community(SPARC) challenge grant. UWOCASO will implement this project with Uganda Cancer Institute (UCI), Women Empowerment Cancer Advocacy Network (WE CAN) and other partners.

\r\n

The project will work to assess the knowledge of clinical and psychological needs of MBC patients among providers, families, policy makers and Advocates, identify the existing challenges in meeting the needs and produce a gap analysis leading a resource stratified policy and practical recommendation and implementation roadmap. A quantitative and qualitative research plus document review approaches will be used.

\r\n

“Over a decade UWOCASO has struggled to give psychological and emotional support to breast cancer patients but without a baseline survey to identify their specific needs during the continuum of care. This grant together with the technical support and expertise from Uganda Cancer Institute, WE CAN and partners I am very hopeful UWOCASO’s future interventions will be evidence based and resource stratified”

\r\nGertrude Nakigudde\r\n\r\nExecutive Director

Please select the social network you want to share this page with:

05

Nov 2015

Cancer Awareness & Screening Campaign Ntinda

Posted by / in News / No comments yet

Kampala Uganda October 18th, 2015. Uganda Women’s Cancer Support Organisation (UWOCASO) In partnership with Uganda Cancer Institute Partnership with African Initiative for Relief & Development.(AIRD)organized a cancer awareness campaign with activities of Breast, Cervical and  Prostate cancer education & screening at St Charles Lwanga Catholic Church Ntinda Kampala.\r\n\r\nMen and women turned up in numbers to show their commitment to the fight against cancer. The campaign was organized to raise awareness and to offer free breast and cervical screening for women and prostate cancer for men above 45years, counseling and link identified cancer cases to appropriate diagnosistic and treatment centers demystify negative attitudes and myths towards cancer, mobilize women to go for breast and cervical cancer screening under the theme “Nobody Should Fight Cancer Alone”\r\n\r\nOver Hundred men and women were educated for Breast, Cervical and Prostate Cancers and screened Breast cancer and Doctors were considering for all women who were not breast feeding and weaning at less than 2 months & Cervical cancer screening was considered for were not in menstruation, pregnant just delivered mothers and sexually active women and those who were Psychologically ready who were ready to be screened and prostate to men who were above 45 were written down and follow up has already done by UCI. A wider population learnt cancer and other aspects of prevention, control and management, signs and symptoms of the disease in Uganda.\r\n\r\n \r\n\r\nHuge number of men and women were educated for Breast, cervical and prostate cancers Over 100 women screened at the end of the day, all people who attended the camp were registered and all men who wanted to screen their prostate were all linked to Uganda cancer Institute for screening, IEC materials were produced and distributed to all people who turned up, wider understanding of cancer and other aspects of prevention, control and management, signs and symptoms of the disease, improved knowledge about early signs of breast, cervical and prostate cancers.\r\n\r\nOther activities of the day included cancer educational sessions by Uganda Cancer Institute educator and UWOCASO team members, breast and cervical sharing testimonies by cancer survivors from UWOCASO, screening by Uganda Cancer Institute and all women who attended cancer educational sessions and 85 women were screened for breast and cervical cancers.\r\n\r\n \r\n\r\nIn addition UWOCASO members also addressed all people on breast and cervical cancers prevention and diagnosis on all our social networks of Facebook and Website.\r\n\r\nFunded by; African Initiative for Relief & Development (AIRD) \r\n\r\n 

Please select the social network you want to share this page with: